Back when I was hot to finish the development of my artificial kidney, a group of patients at Kings County Hospital got together and started one of the very first advocacy groups for folks with a disease. The National Association of Patients on Hemodialysis. From those 6 patients in 1969, who were undergoing dialysis thrice weekly for 12 to 18 hours at a clip (digest that fact for a minute), they involved other patients looking to brainstorm and seek out better alternatives- and changed their name to the American Association of Kidney Patients (AAKP).
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